Rett Syndrome Society of British Columbia

The Rett Syndrome Society of British Columbia (R.S.S.B.C) is a volunteer, non-profit charity for parents, caregivers, researchers, medical professionals and other interested support agencies and individuals. R.S.S.B.C. became incorporated in 2013. The Board of Directors is comprised of parents and caring citizens. R.S.S.B.C. provides information through a website, newsletters and emails. The society helps fund Canadian research projects and advocates to the needs of individuals with Rett Syndrome and their families in the province of BC.

Our Mission

Our mission is to support, educate, and empower those that live with Rett Syndrome and their families. We are driven to raise awareness and understanding of Rett Syndrome in our communities and advocate for those living with Rett Syndrome and those that support them. In addition, we aid financially in research aimed at finding a cure for Rett Syndrome.

Our Vision

That all those living with Rett syndrome are given the support and accessibility to live a life that fulfills their individual potential.

How do we help?

Provide information, support and connection to the families who are living with
Rett Syndrome. Specifically, we:

  • Raise awareness in both the public and medical communities              
  • Provide funds to research projects
  • Provide informative webinars, information, and support
  • Host virtual and in-person gatherings to provide support and networking opportunities