Rett Syndrome Society of BC  depends on volunteers to carry out the work needed to support our Rett community. Just a few hours from you can make a big difference to our families.

Volunteering is a great way to give something back and can be hugely rewarding. It’s also a great opportunity to meet new people as well as to gain new skills and experience – something that can be particularly beneficial as a way of getting back into work.

We’d love you to join us because with your time and enthusiasm and support, we can achieve great things.

If you are interested in volunteering, contact us and tell us a little bit about yourself.

Current Opportunities

For all volunteers, please email info@rettbc.ca for more information.

The RSSBC is now looking for individuals to volunteer their time in these fields of skill:

Videographer/creative director/editor 

Do you have an eye for quality content, a fascination with the YouTube space, and want to volunteer your amazing talents with a small but mighty nonprofit organization? If so, keep reading. As a videographer on our team, you will use your creative skills to plan, film, edit and promote 1 to 2 short videos to be shared via social media platforms and youtube depicting life with Rett Syndrome. Responsibilities include planning all aspects of video shoots, directing and filming video content, editing film footage, and uploading video content to YouTube and other social media platforms. Little to no experience is needed but is an asset, must-have equipment needed to complete the project. 


Are you a Character Animator who can bring life and personality to a variety of characters? Do your strengths include physical action, dynamic posing, and a bit of comedy? If so, we are looking for you! A volunteer who can help explain Rett Syndrome to young children. We are looking for someone who can create a short 10-20 min video explaining why Rett Syndrome makes a person different but still the same.  Ideally, this person can work independently and has a good eye for capturing a younger audience. We are looking for creative and motivated individuals, who aren’t afraid to approach real-life challenges in animation. Little to no experience is needed but is an asset, must-have equipment needed to complete the project. 


Are you passionate about supporting non-profit organizations? 

Do you have an eye for planning and overseeing campaigns and events to raise money and other kinds of donations? If so, RSSBC would love to have you on our team! 

We are looking for someone to ensure the campaigns are effective by researching potential donors and examining records of those who have given in the past 

  • Research prospective donors
  • Create a strong fundraising message that appeals to potential donors
  • Identify and contact potential donors
  • Use online platforms to raise donations
  • Organize campaigns or events to solicit donations
  • Maintain records of donor information
  • Evaluate the success of previous fundraising events
  • Train volunteers in fundraising procedures and practices
  • Ensure that all legal reporting requirements are satisfied

Research Advisor 

Do you have a working knowledge of how research is performed in Canada and maybe around the world and where? 

RSSBC is looking for a volunteer that can guide its boards creating new research opportunities and deciphering research that is already on the market in the field of Rett Syndrome. If you have any previous knowledge that you are able to share with RSSBC we would love to work with you. 

Meetings are bi-monthly and a short report in plain language is required.