💜 Sharing Our Story on Global News 💜 This week was a big moment for us — and one that came with a lot of nerves. Being invited onto Global News to talk about Rett Syndrome was both exciting and intimidating. Speaking on camera about something so personal isn’t easy, but every second was worth […]
Author: Christinea Walker
WINTER RAFFLE
🌟 RSSBC Winter Raffle 2025 — Join Us & Make a Difference The holiday season is a time for generosity, community, and hope — and this year, the RSSBC Winter Raffle invites you to turn warm wishes into real support for families affected by Rett Syndrome across British Columbia. 🎟️ What’s the raffle all about […]
Global News
💜 Raising Awareness on Global News: RSSBC President, Shares the Message of Hope for Rett Syndrome 💜 This week, Christinea Walker, President of the Rett Syndrome Society of British Columbia (RSSBC), appeared on Global BC News to raise awareness for Rett Syndrome Awareness Month and to shine a light on the strength and resilience of […]
What is Rett Syndrome?
💜 Teaching Understanding: RSSBC’s Rett Syndrome Educational Video for Students At the Rett Syndrome Society of British Columbia (RSSBC), one of our biggest goals is to help children and educators better understand Rett Syndrome — what it is, how it affects those who live with it, and most importantly, how we can all connect and […]
Canadian Rett Syndrome Coalition and CORD Press Release
Canadian Rett Syndrome Coalition Demands Justified Reconsideration Under Time-LimitedAccess Framework Rett Syndrome Families Outraged by Canada’s Drug Agency Denial of DAYBUE® (trofinetide) Canadian Rett Syndrome Coalition Demands Justified Reconsideration Under Time-Limited Access Framework TORONTO, ON – October 21, 2025 – The Canadian Rett Syndrome Coalition – comprising the Rett Syndrome Society of British Columbia (RSSBC), […]
Rett Syndrome Family Symposium
Due to Covid 19 this event has been postponed.
Welcome to our new website!
I would like to take a minute and say thank you for visiting our website. Learning about Rett Syndrome can feel daunting regardless of the reasons you are doing so. However, know that you are not alone. We at R.S.S.B.C. are here to support you whether you have a relative with Rett Syndrome, are a […]