BCCH Family Survey
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Category: News
BCCH Family Survey
Global News
💜 Raising Awareness on Global News: RSSBC President, Shares the Message of Hope for Rett Syndrome 💜 This week, Christinea Walker, President of the Rett Syndrome Society of British Columbia (RSSBC), appeared on Global BC News to raise awareness for Rett Syndrome Awareness Month and to shine a light on the strength and resilience of […]
Canadian Rett Syndrome Coalition and CORD Press Release
Canadian Rett Syndrome Coalition Demands Justified Reconsideration Under Time-LimitedAccess Framework Rett Syndrome Families Outraged by Canada’s Drug Agency Denial of DAYBUE® (trofinetide) Canadian Rett Syndrome Coalition Demands Justified Reconsideration Under Time-Limited Access Framework TORONTO, ON – October 21, 2025 – The Canadian Rett Syndrome Coalition – comprising the Rett Syndrome Society of British Columbia (RSSBC), […]
Rett Syndrome AGM
The Rett Syndrome Society of BC Annual General Meeting is Sunday April 30th at 7:30 pm! For those who are part of our newsletter mailing list, you should have gotten an email invite, if not, please email info@rettbc.ca so that you can participate! As a society, we would love to hear your opinions, thoughts, feelings, […]
Raffle Winners!
We are proud to announce the winners of this year’s raffle. Thank you to all who participated! $300.00 Amazon gift card – T. Faulkner, from Kamloops, BC $150.00 Amazon gift card – K. Krall, from North Delta, BC $100.00 Amazon gift card – K. Bjorgaard, from Thornhill, BC
Winter Raffle
The Winter Raffle is finally here! Ticket sales end December 27th and are available here: https://rettbc.rafflenexus.com/
Christmas Tree Festival
A huge thank you to the Suhl Family for all their time, effort and donations towards the 1st awareness tree for the Port Coquitlam 10th Annual Christmas Tree Festival. For those that don’t know the festival is a chance to vote on your favourite Christmas tree that have been set up throughout the city of […]
LIGHT UP DAY
Thank you to all the Rett Syndrome Organizations and Associations of Canada: Rett Syndrome Society of BC Rett Syndrome Society of Alberta Saskatchewan Rett Syndrome Association Manitoba Rett Syndrome Association Ontario Rett Syndrome Association Association québécoise du syndrome de Rett
Locations for #LightCanadaPurple
Here are the locations for this year’s cross-Canada collaborative light-up! Feel free to take photos of the places lighting up in your hometown. We are so excited to see Canada glow purple this year. -The RSSBC Team
Rett Syndrome Awareness Video
As October is coming to a close, we wanted to present this video made by the Ontario Rett Syndrome Association in collaboration with the other Rett Syndrome societies and associations in Canada, including us. Enjoy! -The RSSBC Team