On Thursday, October 29, 2026, landmarks, homes, businesses and communities across Canada will glow PURPLE for Rett syndrome as part of the Light Canada Purple campaign. Each October, Rett Syndrome Awareness Month gives us an opportunity to help more people learn about Rett syndrome, recognize the incredible individuals and families within our community, and start […]
Author: Christinea Walker
💜 pRETTy Awesome is Back for 2026!
October is Rett Syndrome Awareness Month, and this year Rett syndrome organizations from across Canada are once again joining forces to celebrate just how pRETTy Awesome individuals living with Rett syndrome truly are. The 2026 pRETTy Awesome Campaign is a collaborative initiative involving the Manitoba Rett Syndrome Association, Rett Syndrome Society of British Columbia, Rett […]
Request a Rett Education Ambassador for Your School Team
New teachers. New Educational Assistants. New support staff. New routines. For families of children with Rett syndrome, back to school often means helping an entirely new team get to know your child — how they communicate, what helps them participate, what supports they need, and how to make sure they are meaningfully included throughout the […]
Back to School with RSSBC
Heading back to school? RSSBC has a number of free school resources available to help students, families, teachers and classmates better understand Rett syndrome. Our school resources include: These resources can be used at the beginning of the school year, when transitioning to a new classroom or school, or anytime you want to help classmates […]
In Person Social
Join Us for Our Rett Syndrome Family Social at Unwin Park! The Rett Syndrome Society of British Columbia is excited to invite families to our upcoming in-person Rett Syndrome Family Social at Unwin Park in Surrey on Saturday, September 19, 2026. One of the most valuable parts of the Rett community is simply having the […]
Virtual Social
Join Us for Our September Virtual Rett Syndrome Family Social The Rett Syndrome Society of British Columbia is inviting families to join us for our next Virtual Rett Syndrome Family Social on Wednesday, September 2 at 7:00 PM Pacific Time. Our virtual socials are a simple way for families to connect from the comfort of […]
Become a Rett Education Ambassador
Help Change the School Experience for Students with Rett Syndrome Every school year, families of students with Rett Syndrome face the same challenge: helping a new team of teachers, educational assistants, therapists, and school staff understand a condition they may have never encountered before. Imagine if every school had someone who could help bridge that […]
BCCH Family Survey
Month of Giving Back: Rett Syndrome Society of BC
💜 Sharing Our Story on Global News 💜 This week was a big moment for us — and one that came with a lot of nerves. Being invited onto Global News to talk about Rett Syndrome was both exciting and intimidating. Speaking on camera about something so personal isn’t easy, but every second was worth […]
WINTER RAFFLE
🌟 RSSBC Winter Raffle 2025 — Join Us & Make a Difference The holiday season is a time for generosity, community, and hope — and this year, the RSSBC Winter Raffle invites you to turn warm wishes into real support for families affected by Rett Syndrome across British Columbia. 🎟️ What’s the raffle all about […]