Join Us for Our Rett Syndrome Family Social at Unwin Park! The Rett Syndrome Society of British Columbia is excited to invite families to our upcoming in-person Rett Syndrome Family Social at Unwin Park in Surrey on Saturday, September 19, 2026. One of the most valuable parts of the Rett community is simply having the […]
Help Change the School Experience for Students with Rett Syndrome Every school year, families of students with Rett Syndrome face the same challenge: helping a new team of teachers, educational assistants, therapists, and school staff understand a condition they may have never encountered before. Imagine if every school had someone who could help bridge that […]
A huge thank you to the Suhl Family for all their time, effort and donations towards the 1st awareness tree for the Port Coquitlam 10th Annual Christmas Tree Festival. For those that don’t know the festival is a chance to vote on your favourite Christmas tree that have been set up throughout the city of […]
UBC student, Vivian Hou, reached out to RSSBC in June of 2020 to offer her amazing drawing/sketching skills. Vivian spent months creating a new tool for children to understand why their peers are both similar yet different. This amazing tool was built into a coloring book that can be used in both school or community […]
UBC student Arlena approached RSSBC in 2020 just after the pandemic hit. She has been building RSSBC’s newsletter designs and sending them to all our members and supporters on a regular basis. She has found new programs to make this not only easier for the society but also more appealing for those to read and […]
Kathryn Shantora is the co-founder of RSSBC. She helped build the community well before RSSBC was established in 2013. She hosted/supported multiple meetings and connected with many families giving them a place to feel safe while talking about daily challenges. Kathryn’s busy schedule meant she was not able to take on a large role with […]
Christine is a veterinarian by trade and has been a huge asset to our organization. She comes with a medical background and is able to put medical terminology to plain language. Christine works tirelessly on creating snapshot reports on research papers all while finding ways that RSSBC can raise funds to ensure our programs are […]
Karl, a web designer and father to a child with Rett Syndrome connected with RSSBC after his child was diagnosed. He offered up his skill set to help develop a new website, promoting not only the society but to help get resources and information to families and supporters in a timely and efficient manner. Karl […]
Alice has been volunteering with RSSBC since the summer of 2020. She was instrumental in our Rett Syndrome awareness campaign in October. She tirelessly contacted every mayor/city in which a person with Rett Syndrome lived in BC, asking for a light-up event and/or proclamation. It was because of her efforts that we had 10 locations […]
Entrepreneur, Leigh Anne Stitt has been volunteering with RSSBC for two years. She reached out to RSSBC after her niece was diagnosed. She wanted to help not only her niece and family but others like them. Leigh Anne accepted the Vice President position and has been a huge assist to the society. Leigh Anne brings […]