💜 Raising Awareness on Global News: RSSBC President, Shares the Message of Hope for Rett Syndrome 💜

This week, Christinea Walker, President of the Rett Syndrome Society of British Columbia (RSSBC), appeared on Global BC News to raise awareness for Rett Syndrome Awareness Month and to shine a light on the strength and resilience of families across Canada who live with this rare neurological disorder every day.

During the interview, Christinea spoke about what Rett Syndrome is — a rare and complex condition that primarily affects girls, robbing them of speech, mobility, and independence, but never their incredible spirit. She also discussed the importance of early diagnosis, support services, and ongoing advocacy for access to life-changing treatments.

“Every day, families face challenges most people can’t imagine,” Christinea shared. “But through awareness, compassion, and community, we can create real change — we can give hope.”

Christinea also highlighted the work RSSBC and other provincial associations are doing through the Canadian Rett Syndrome Coalition — a united effort across provinces including Manitoba, Alberta, Saskatchewan, Ontario, Quebec, and British Columbia. Together, they are advocating for improved access to drug therapies.

Throughout October, RSSBC continues its awareness efforts through campaigns like Light Canada Purple for Rett Syndrome — where landmarks and homes across the country glow purple on October 29th in solidarity with the Rett community. These campaigns help bring visibility to a condition that is often misunderstood and overlooked, while reminding families that they are not alone.

Christinea’s appearance on Global BC is another step forward in building awareness, understanding, and compassion. It’s a reminder that every voice, every story, and every light matters.

Together, we can continue to shine a light on Rett Syndrome and bring hope to families across Canada.

📺 Missed the interview? Watch it here — https://globalnews.ca/video/11494763/womens-health-october-rett-syndrome-awareness-month/

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