This October, communities across British Columbia—and across Canada—will be coming together to shine a light on Rett Syndrome Awareness Month. Each year, landmarks and public spaces glow purple to honor those living with Rett Syndrome and to raise awareness nationwide. We’re proud to share that several incredible locations in B.C. have already confirmed their participation […]
Tag: rett syndrome
💜 Get Ready for the 2025 pRETTy Awesome Campaign in BC!
We’re thrilled to announce that the pRETTy Awesome Campaign is back for 2025! This annual initiative is one of our favorite ways to raise awareness for Rett Syndrome, bring our community together, and show support not only in British Columbia but across Canada. This year, we want to make sure everyone has a chance to […]
In Person Social Sept 21
RSSBC is hosting its first in-person event since 2018 at Unwin Park in Surrey. Join us for an afternoon of fun, connection and lunch. This event is rain or shine. RSSBC will provide tents to ensure there is shelter from the elements. Simply bring your family and a chair to relax in. The 12,000-square-foot playground […]
Josh’s Journey
We are very happy to introduce a new ongoing segment in our news! Josh McCulloch and his family have currently embarked on a journey across Canada in their RV. Josh and his wife have two kids, and one of them, June, has Rett Syndrome. Josh has given us permission to share his story and we […]
National Volunteer Week- Kathryn Shantora
Kathryn Shantora is the co-founder of RSSBC. She helped build the community well before RSSBC was established in 2013. She hosted/supported multiple meetings and connected with many families giving them a place to feel safe while talking about daily challenges. Kathryn’s busy schedule meant she was not able to take on a large role with […]
National Volunteer Week- Rachel Kwong
High school student, Rachel Kwong has been volunteering with RSSBC since August 2020. Rachel has been working on perfecting RSSBC’s new website. Each week she looks at the website and ensures that it is current, appealing, and easy for all to use. Without Rachel, RSSBC would not be able to keep our community informed and […]