In Person Social Sept 21

RSSBC is hosting its first in-person event since 2018 at Unwin Park in Surrey. 

Join us for an afternoon of fun, connection and lunch. This event is rain or shine.

RSSBC will provide tents to ensure there is shelter from the elements. Simply bring your family and a chair to relax in. 

The 12,000-square-foot playground includes accessible play elements such as the We-Go-Round, Sway Fun Glider, Omnispin Spinner, Cozy Dome, We-Saw, Netplex, Smart Play Motion, Sensory Play Center, Rhapsody Music Collection, slides with transfer benches, and a variety of swings, all connected by a double wide accessible ramp system and unitary surfacing with seamless transitions.

The park is equipped with wide open field areas to gather, a large wheelchair-accessible washroom ( no change table) and three accessible parking spaces.

  • Rain or Shine 
  • Bring the whole family!
  • Unwin Park, 68 Avenue, Surrey B.C.
  • September 21st, 11 am-3 pm
  • Lunch will be provided (those with dietary restrictions should bring their own foods.)

RSVP by Sept 9th

Rett Syndrome AGM

The Rett Syndrome Society of BC Annual General Meeting is Sunday April 30th at 7:30 pm! For those who are part of our newsletter mailing list, you should have gotten an email invite, if not, please email info@rettbc.ca so that you can participate!

As a society, we would love to hear your opinions, thoughts, feelings, and concerns. As well, we do need at least 5 members to make proxy and to ensure that we are representing and encompassing the experiences of those we serve each year.

Bonus: if you attend the entire meeting, you will automatically be entered into an Amazon gift card draw.

Hope to see you there!

– The RSSBC Team

Raffle Winners!

We are proud to announce the winners of this year’s raffle. Thank you to all who participated!

$300.00 Amazon gift card – T. Faulkner, from Kamloops, BC

$150.00 Amazon gift card – K. Krall, from North Delta, BC

$100.00 Amazon gift card – K. Bjorgaard, from Thornhill, BC

Christmas Tree Festival

A huge thank you to the Suhl Family for all their time, effort and donations towards the 1st awareness tree for the Port Coquitlam 10th Annual Christmas Tree Festival.

For those that don’t know the festival is a chance to vote on your favourite Christmas tree that have been set up throughout the city of Port Coquitlam. RSSBC’s is set up at the Hyde Creek Recreation Centre in the main lobby.

The festival/voting will being Nov 25th and ends Dec 16th. Winners will be Announced on Dec 16. The trees will remain in place until Jan 3rd silently raising awareness for Rett Syndrome.

We encourage everyone to take a few minutes and come down and check it out! Its more beautiful in person then it is in the photo! Thanks to the design and planning of Sukhi!

downtownpocobia.com/christmas-festival

LIGHT UP DAY

Thank you to all the Rett Syndrome Organizations and Associations of Canada:

Rett Syndrome Society of BC

Rett Syndrome Society of Alberta

Saskatchewan Rett Syndrome Association

Manitoba Rett Syndrome Association

Ontario Rett Syndrome Association

Association québécoise du syndrome de Rett

Rett Syndrome Awareness Video

As October is coming to a close, we wanted to present this video made by the Ontario Rett Syndrome Association in collaboration with the other Rett Syndrome societies and associations in Canada, including us. Enjoy!

-The RSSBC Team

#LightCanadaPurple

Light Up Purple For Rett Syndrome!

If you did not know already, October is Rett Syndrome Awareness Month!

This year, we are inviting you to help spread the word about Rett Syndrome. On October 29th, landmarks across Canada will be lit up purple for Rett Syndrome.

R.S.S.B.C. is looking for locations in your community that light up for various causes. If you know of a location that we should contact please let us know at info@rettbc.ca

Thank You!

-The RSSBC Team

New YouTube Videos!


Did you miss one of our amazing communication webinar sessions or wish to rewatch one?

Don’t worry we have a list of links for you!

Our next session is on Monday “AAC in School: Tips for Parent Advocacy”

PODDS and Literacy https://youtu.be/L–28fQw1jg

AAC: Where to Start https://youtu.be/fKsf6CmrYA8

Shared Reading and AAC https://youtu.be/bSjirGZq3vg

Supporting Communication and Independence with Grid https://youtu.be/uLKg2h2aHTc

-The RSSBC Team